Supporting Others
The EB Medical Research Foundation
was established in 1991 to fund the Stanford University School of Medicine in
their continued research and study of a rare genetic disorder called epidermolysis
bullosa (EB).
There are several forms of this inherited blistering skin disease, ranging from
mild to the severely disabling and life threatening. It affects all ethnicities-as
many as 500,000 people worldwide. Until recently, children born with one of the
two lethal forms of the disease had no expectation of a normal life.
The EB Medical Research Foundation is uniquely
run on a volunteer basis; it donates 99% of its contributions directly to this
program. In the last few years Stanford's scientists have made great strides with
their gene therapy research. And as a result, gene correction for one of the two
lethal forms of this disease is now possible.
It is our privilege to donate a portion of the proceeds from Life Lessons for
Busy Moms to the EB Medical Research Foundation
for their support of Stanford University School of Medicine as they continue to
study and research this tragic disease.
If you would like more information please contact:
Andrea Pett-Joseph
Mailing & Administrative Offices
EB Medical Research Foundation
8909 W. Olympic Blvd. # 222
Beverly Hills, CA 90211
Phone: 310-979-8078
Email: a.pett@bgent.com
www.ebkids.org